MLP Foundation
"It's 4 The Right Reason"

Mary-Louise Pawlowski

Frequently Asked Questions

Q: How can I obtain a "MLP Wristband"?
A: If you would like to make a contribution or order "MLP Wristbands" you can order them online or print this order form and mail a check payable to MLP
Foundation to:

 

MLP Foundation
c/o SC Federal Credit Union
P.O. Box 190012
North Charleston, SC  29419-9012

 

"MLP Wristbands" are $5 each.  Proceeds and contributions will go to the MLP Foundation to support cancer research and to help defray medical related expenses.

 

You will have the chance to include optional instructions to us that can specify your preferences of designating your donation to support cancer research, help defray medical related expenses, or no preference.

 

We R Praying 4 MLP
We R Praying 4 MLP



Mary-Louise's BLOG
From the Mary-Louise Pawlowski Care Page at the Medical College of Georgia

 

Posted Jan 28, 2010 10:30pm
I'm sooooo sorry. I haven't been on in what seems like forever and a lot has happened. So last Tuesday I was sitting in English and I had this terrible pain in my left kidney area in my back so I called my mom to come get me and I was running a low grade fever which was odd because I was on an antibotic for a urinary track infection. So my mom called the clinic and they told me to come in the next day(Wednesday). So we did and the dr. said that the pain was probably from the large bladder stone they found on the last scan. So the dr. called the urologist and he was out of town and he said he would call us on Friday. So the dr. at the clinic went ahead and scheduled an appointment with him on that next Thursday(today) because I had an appointment with Dr. Hatley already to set a date to get my port take out. So that Friday the urologist calls and he says to call him on Sunday because we needed to take the stone out and he said that it would have to be on Friday(tomorrow) because he was completely booked but to call him on Sunday if I couldn't make it to Friday and he would schedule me on Monday as an emergency case. So Sunday came and we decided to wait till Friday. So we asked Doctor Hatley if we could get the port taken out the same day and he said yes!! So I'm getting my stone removed tomorrow and I'm being deported(haha Mrs. Cindy)at 8:30 AM!!!! Sorry this update is way overdue!!

And the most visits goes to Keith Claussen at 258 and second place goes to Len Ferguson(don't think I spelled that right) at 257!!!!!!!!



Posted Jan 18, 2010 2:34pm

Ok so last week I went in for a count check as usual and my mom asked when I can get my chemo port out. And the doctor said since my scans were good we can do that soon. So on January 28th I have an appointment with Dr. Hatley to set a date for my port removal!!!!!!!! And schools good.... but thats about it. And if you live in North Augusta enjoy this nice weather!!

 

Posted Jan 10, 2010 8:24pm

Hey.... well I had my scans two weeks before Christmas Break and we got the results and everything looks fine except they think they found the cause of my stomach problems.... a bladder stone. they said its too big to pass so we are going to have to find a way to get it out. but its a HUGE relief that we now know what it is. I have a doctors appointment this Wednesday so we are going to see what the plan is. And school is going well and the 2nd nine weeks ends next week. My Christmas and New Year was wonderful and I hope everyone else's was too.

 

Posted Dec 18, 2009 3:18pm

Alright sorry it's been so long... but I've been really busy with school. So about a week ago I had my NG scope done and they didn't see anything... and I had my scans and we haven't gotten the results back yet so we are waiting on those. I also had a MRI and we are waiting on those also. So my Christmas break has officially started at 2 o'clock today.. we had exams since tuesday and man am I happy those are over. I did really well I think. I'm going to Auburn, AL for Christmas and to work some camps and then December 31 we are flying up to New York so I can see my family and Chelsea!!!!! So I will probably post again after that. I hope everyone has a safe and wonderful holiday!!!!

MERRY CHRISTMAS!!

Posted Nov 13, 2009 10:48pm

Ok, I have some news. I was sitting in science class yesterday and I started to feel sick. So I asked Mr. Champion(science teacher) if I could go to the bathroom. So I went and nothing happend so I wiped my face with a cold paper towel and went back to class. 2 minutes later I started sweating bullets again and felt sick to my stomache and I was in pain. So I asked Mr. Champion if I could go call my mom and so then I went to the office. I called my mom and she was at the bank and if you live in North Augusta and bank at Wachovia then you know it takes forever to get through the drive-thru. So I was walking back down the little hallway to go back to class when I almost collasped on the floor. So I went into Mrs. Stallings(guidance counselor) office and I sat there crying because my lower abdomin was hurting sooooo bad. I can't tell you how bad it hurt. I was leaning forward, screaming, and bent over a trash can because it hurt so bad. So she called my mom again and asked if she could give me some advil and mom said yes so I took some but then the pain got even worse. I imagine that is what giving birth feels like. It felt as if something were eating me from the inside out, and stabbing me right in the stomach over and over and over again. So I told Mrs. Stallings that I needed to lay down so we proceeded to walk across the hall to the nurse's office but I felt like I was going to pass out so I barely made it by holding on to Mrs. Stallings and I layed down on the nurse bed/table thing. I was screaming and crying and finally I told her to call an ambulance and then my mom walked in and said Mary-Louise come get in my car we're going to the hospital, I was fine with this because I was in sooo much pain. I tried to get up but the pain was so excrutiating I couldn't walk so Mrs. Stallings called an ambulance and finally it came and my mom and I got in and went to the emergency room. Then I got some pain medicine and Dr. Hatley came in looked at me all perplexed like and said that I need to have a CT scan. So I had my scan, after drinking all that nasty junk, and it showed the same thing it did last time. I had an absest in my left rectum area and some inflammation around my apendix. In July they thought the inflammation was due to me about to start my lady thing but I still haven't started back since I came off the medicine in March that maked it stop. So the ER surgery team said my apendix probably needed to come out but Dr. Hatley said no he doesn't want to start taking things out that might not be causing the problem. So then at 12:30 a.m. this morning I was discharged. I have no idea what caused the incredibly killing pain in my stomache yesterday around 2:40pm but I sure hope it doesn't happen again. But I wanted to let everyone know I am doing okay now. My stomache still hurts a bit but not as bad as it did. Also, my scans are scheduled for the Wednesday before Thanksgiving. I am also scheduled to have a MRI of my stomache to see what the heck is up. I hope that this didn't scare you but I'm doing okay now. Thanks for reading this extra long update.

 

Posted Oct 31, 2009 6:55pm

hey well i got back from disney world last tuesday and it was awesome!!!!! i had sooo much fun. but now i have to get back to the real world of school and homework. that stinks but its true. I have scans due but of course mcg hasn't scheduled them. so hopefully they will get to work and do that. but i shall inform u when i find out when they will be. bye

 

Posted Oct 9, 2009 2:32pm

Ok well my last update said I like to write e-mails CHRISTINE!!!!!!! It wouldn't give you the correct answer if you go to free translate.com CHRISTINE! But I had fall break yesterday and today so ha no school!! I'm doing well so I'll post again later. Oh and I got the best birthday present ever!!! I'm going to disney world on October 22! I've always wanted to go in October and see all the bad witches and people come out and go trick or treating so we get to go!!!! yay. and I'd also like to thank Len for my abercrombie and fitch gift card. I was going to write you a thank you note but i haven't had time. sorry. BUT THANKS ALOT. Love you all, I have some no school things to do!!! :)

 

Posted Sep 25, 2009 9:58pm

Hey. school went well this week. im going to auburn this weekend and i have to give the prayer pager back because the church needs it because there is a waiting list and im doing fine so itll do someone who is struggling some good, so dont page me anymore if u dont mind. i enjoyed it while i had it. but i'll post later. adios amigos. a mi me gusta escribir los electronicos. haha tell me if you can figure that one out!!



Posted Sep 18, 2009 6:00pm

Well I'm truly sorry I haven't posted in a while, but I've been kind of busy. But the driving isn't going so well. I give up trying to learn on a stick. Although that creates a problem. The only car my mom has to drive is the Jeep. And Christine is never home, which is sad, so I can't learn on hers. So we are stuck in a rut. But on the other hand, I had a doctors appointment for my counts and they are fine. Then I had another doctors appointment with a gastro-intestional doctor, because my stomach is always hurting, and he found out that I have an infection. So they gave me some medicine for that and hopefully it goes away. But other than that school and everthing is good.



Posted Aug 29, 2009 9:07pm

I got my permit yesterday!!!!! I'm learning on my mom's jeep, and its a stick.... EVERYBODY CLEAR THE STREETS!! haha just kidding :)

 

Posted Aug 27, 2009 8:42pm

ok well today i went to the doctor, i'm assuming that my counts are fine but today i had to have an xray b/c i've been having this pain in my right chest and back so we will find out the results of that later. nothing to worry about... hopefully. but schools good.

 

Posted Aug 22, 2009 10:21am

Well my birthday was yesterday and it was pretty good. And I started school on Wednesday and I like it. It is good to be back. I have a doctors appointment on the 27th to get my counts checked and I'll probably post again then.

 

Posted Aug 13, 2009 12:19pm

Okay well I have a doctors appointment on monday to go see a bladder specialist, its just a follow up appointment. Then school starts Wednesday. I'm really nervous. And then my birthday is friday the 21st. I'll be 15!!!! That means I can get my driving permit!! I haven't even opened my manual. haha. Well I have stuff to do so I'll post later. :)

 

Posted Aug 3, 2009 9:28pm

ok well i had another ct done today and the "thing" in my rectal wall hasn't gotten smaller or bigger so that's good. they still don't know what it is but they are treating it as inflamation with antiboitics. other than that i'm doing fine!

 

Posted July 31, 2009 3:36pm
ago ok, well I saw dr. pipkin this morning and he said that he would take me to the O.R. and so I was taken back and he said that he couldn't see anything because in order to do so he would have to open my skin graphs and he didn't want to do that. so he decided that he would give me antiboitics and that on monday i would have another scan and see if it has gotten smaller. if not he would do a needle biopsi. but i'm doing good and at home. thanks for the prayers, keep on sending them up!!

:(
Posted July 30, 2009 3:09pm
Well I got the results back from my scans about 30 mins. ago....
they said that they saw a pocket of fluid in my left rectal wall
and that Dr. Pipkin(surgeon) wanted to take a look at it tomorrow
morning and that he might need to take me into the o.r. but other
than that everything else looked good. So I'm sad of course but you
have to take life one day at a time.

Posted July 29, 2009 4:42pm
Hey guys I had my scans yesterday and they went well. I won't
get the results till later this week or next week. I also got my
counts checked yesterday and they were all good. So when I get the
results back I will post an update.

Posted Jul 24, 2009 4:01pm
Hey guys just a reminder that I have my scans tuesday! I'm
nervous of course. Please pray for good results.

Prayer Pager number
Posted Jul 18, 2009 3:32pm
Alright, the number for the Prayer Pager is 334-742-5230. It
will be a girls voice saying you have reach the Auburn United
Methodist Church Prayer Pager at the tone please dial 111#(that
symbol is pound). and then I shall get the page. Well right now I
am at camp so I must get back to work. Thanks for still praying for
me!

Prayer Pager
Posted Jul 17, 2009 2:33pm
Hey everybody, I'm in Auburn and taking a break from working so I decided to post an update. I just got my prayer pager like 2 weeks ago, but it was dead so I just put new batteries in it like 3 days ago, and its gone off a ton!! So I want to say thanks for paging me when you pray for me. It helps me understand for real how many people pray for me. Alot of people say they do but I never really understood untill I got my pager. I don't have it with me right now, but later if y'all want the number so when you pray for me you can page it just write a message and say so. Well got to go. Leave me some!

Posted Jul 12, 2009 5:32pm
Well I got back from the beach today, and it was alot of fun. I
wanted to let y'all know that I have my scans July 28. so that'll
probably be the next time I post an update. I am going to Auburn to
work camps this week and the next week. So I'll post later.

Posted Jun 17, 2009 1:58pm
Hey guys its me!! Wow I haven't been on here in a looonnnggg
time. So I have lots to share.... first I am walking independently
since the 2nd week in may I guess. And I went to New Jersey with my
Mamaw(my mom's mom) and Daddyfred(my mom's stepdad). I went all by
myself, without my mom. That was the first time in a while that I
had been without her for 2 weeks. It was good to be away and get
some independence back. Now it is Summer and I'm sooo happy!! I
recently got my counts checked last Friday,  they were all good. I am due to have scans either at the end of this month or the end of July, whenever they can fit me in. I go to the beach(Edisto) on July 5th for a week with my whole family!! I'm so excitied. Then I'm going to Auburn to work some camps for my dad. Christine recently had knee surgery b.c three years ago she hurt it really bad and now they found out she tore the legiment, so they fixed that last thursday. I am going to start highschool in the fall this year!! Everyone is asking what grade i'll be in, and that would be 9th. So now the plan health wise is that I go get my counts checked once a month and have scans every 3 months. I'm doing Awesome and I hope everyone has a nice and safe summer!!!


Posted Apr 23, 2009 8:39am
Sorry I haven't posted a new update in a while but I was
discharged on April 1st. So now I'm home and loving it.

Posted Feb 27, 2009 3:46pm
It's Mary-Louise here and I'm just posting an update to all of those wonderful people out there praying for me. So here it goes, I am doing well and my wounds from the vancamicin are looking alot better and Dr. Hatley said my skin graph surgery will be thursday. A skin graph is where you take the top layer of skin from some place on your body and put it on top of the wound that needs it. So then after that is done the healing process begins. Dr. Hatley says it'll probably be a couple of weeks before they will let me go home. So that's about it for me. Thanks for checking in.

Posted Feb 16, 2009 12:56pm
hey its mlp. i just want to thank everyone who is praying for me and to let y'all know i'm doing alot better. hopefully i'll be going home soon. once again thanks.

Posted Dec 24, 2008 11:25am

Well I was discharged on monday the 22nd and feeling pretty good I go in on monday to get my counts checked. Have a Merry Christmas!!!!


Hey Y'all!

Posted Dec 19, 2008 6:49pm

Well, I am laying in my hospital bed getting chemo. I can't fall asleep even though my nurse has given me all the medicine to fight nausea that she can for a while. Stinks. So, I decided to write a quick note. The celebrations have started because this is my LAST 5 days of chemo. EVER. A bunch of nurses and Kim, from child life, came in this afternoon and gave me cupcakes and a Dr. Seuss book called Oh the Places You'll Go. Then they all shot me with silly string...at one time. My mom read me the book and it's amazing how much it really goes with this past year.

I know a lot of you have seen in the news, internet, paper or heard on the radio about the blanket warmer gift for the clinic. My dad did the hard part of running 26 miles, but I wanted to send all of you who sent donations in to RunCoachRun.org or my foundation a HUGE THANK YOU. We couldn't have made the presentation Monday without all of your support.

Of course, it was my idea to give the warmer to the clinic! I'm just glad I may not have to use it! HAHA. But all the kids who stay bundled up in there, and maybe even some of the staff, are really gonna like having warm blankets to cuddle up in. I wanted to include my home address in this so I can get more Christmas presents, but my Mom just said, "Absolutely not." Man........oh well. amazing how typing makes you sleepy...


Posted Dec 15, 2008 11:38pm
Sorry I haven't posted a new update in a while, but my computer crashed. Today we presented a 10,000 dollar check to the MCG clinic for the blanket warmer and renovations. Also my counts are good and I am going in to the hospital on Wednesday for which will hopefully be my last chemo treatment. Well thats about it. CHRISTMAS IS ALMOST HEAR!!! yay. Moms not ready. ha

Posted Dec 7, 2008 11:00am

Well Friday went well I guess, I don't remember much but I do remember waking up in the hospital. My mom said the infectious disease doctor came into the clinic and looked at my toe and decided that I needed iv antibotics every 8 hours. So I was wheeled over to the hospital and they said I would have to stay at least till Monday. But SURPRISE I'm home. I'm feeling pretty good except for my mouth tasting nasty. Well I'm heading to the parade later so bye!!


Posted Dec 4, 2008 9:12pm

Well I have my outpatient round tomorrow and hopefully I will be feeling good enough to go to the Christmas Parade on Sunday. I probably won't be on my computer tomorrow so leave me messages to come back to!!!


Posted Dec 2, 2008 9:08am
Well yesterday I didn't have my chemo because it took the people at the clinic too long to get my vital signs and when they were finally ready to do it, it was already 12:30. They said if I wanted to do my chemo then I would have had to take one of my medicines home and drink it. ewwwwww. So now chemo will be on Friday.

Posted Nov 28, 2008 5:14pm

well sorry i haven't written in a while but i went to get my counts checked tuesday(the 25th) and they were good but not high enough for chemo so i am going in next tuesday for my 1 day out-patient. also when i went tuesday they think i have an infection in my second toe on my right foot because it's all red and swollen. haha so i'm on medicine for that. well thats about it. oh and i don't have to have the bone marrow test yay.


Posted Nov 21 4:41pm

Well I went to go get my counts checked yesterday and my white blood cells are good to go but my hemoglobin and my platelets aren't coming up. So Monday I won't be having chemo. I'll go into the clinic Tuesday and if my counts are high enough I'll have chemo then but if there still not and my platelets have gone up hardly any they will schedule a bone marrow test the following week. They will put me to sleep to do the bone marrow test. They are pretty concerned about my counts not coming up much. They think my bone marrow is just tired. Hopefully that is all that is wrong with it, so please send up some extra prayers.


Posted Nov 18 6:41pm
I went to Auburn this past weekend, it was good. My counts are FINALLY starting to come up. They think I will be ready for chemo next monday, but we aren't sure yet. But after this round only 1 more to go and hopefully I'll be done!!!!! yay

Posted Nov 8, 5:39pm

ok well today(Saturday) we were supposed to go to Auburn for the welcome to auburn fundraiser but we didn't go because I woke up this morning not feeling to good. I'm not feeling well because my counts are low. They should be coming up sometime next week. This coming weekend we are going to Auburn because one it's the Georgia game and two because Dad closes on his house and we can't wait to see it all done. You can still donate to the foundation for a blanket warmer for the clinic. Well I'm watching the Clemson game and it's getting pretty good so I'll update in the next few days.



Posted Nov 4, 2008 8:54pm

Well I was discharged yesterday(monday) and feeling okay but going down hill b/c my counts are dropping. Dad finished the marathon in 3 hrs. 48mins (remember it was 26 miles). We also got information from MCG about the blanket warmer and are excited about being able to purchase one from the funds Dad raised( website for donation: runcoachrun.ORG people org!!) One of our friends, Len Ferguson, created a slide show of my journey so far and it's on You Tube(www.youtube.com) if you want to watch it click on the video tab near the top of your screen and type Mary-Louise Pawlowski in the search link. The video should be at the top of your search results. Well that's about it, I go into the clinic tomorrow(Wednesday) to get my counts checked so I'll update later.

Posted Oct 29, 2008 2:20pm
Well I just arrived in my penthouse suite. haha yea I wish. I'm not sure when they'll get my chemo started but it'll be sometime today. I have just developed a craving for some sesame chicken. yummy. well i'm getting off now. bye!!

 

Posted Oct 18, 2008 2:11pm
Yesterday I went to the clinic to get my counts checked and it was sooo weird because Dr. Bell came into the room and she said that she didn't have to give me anything(we were expecting that I was going to need platelets and blood). She thinks that my counts dropped and already are starting to come up. Last Wednesday and Thursday I wasn't feeling good at all and then we went into the clinic on Friday and my counts were fine. It was kinda weird because my counts have never came up that fast. But yea anyways that's about it.


Posted Oct 10, 2008 4:36pm

well chemo went well yesterday, i'm just feeling yucky. my mom found out how much a blanket warmer cost and it cost between 5,000 and 10,000 dollars so please help and donate at www.runcoachrun.org

 

Posted Oct 8, 2008 9:28pm

THIS JUST IN!!!!!

My bad everyone. I posted the update below this morning but it was really an update from last week soooooo my out patient chemo(one day instead of two) is tomorrow instead of next wednesday or thursday. My apologies. Tomorrow I will find out how much a blanket warmer cost since everyone is wondering. For all of you who don't know what a blanket warmer is google it. haha just kidding it looks like a stainless steel refridgerator and it holds well my mom and i sat here wondering how many but we don't know how many it truly holds anyways it holds a bunch of blankets and keeps them nice and toasty for people like my mom and me who freeeeeeze to death at the clinic. And see now if you were to ask for a blanket it would be colder than the temperature of the room so that is why i want to get them a blanket warmer. well i am extremely tired and i must get my rest considering how many times i have hit the backspace key.

 

Posted Oct 8, 2008 12:47pm

Sorry I haven't been on in a while but I got out of the hospital last sunday. I've just been feeling so well that I've been spending my time doing fun stuff other than being on the computer if you know what I mean. So next week I have to go in for out-patient chemo, either wednesday or thursday. But it won't be so bad because I only have to go in for one day instead of two. I don't know why that is but it is. Well thats about it.

Don't know if all of you that read my updates know that MCG is going to be renovating the children's oncology clinic. That is where I go see my doctors in between chemo treatments for them to check my counts, get blood and all that other time consuming check-up stuff I have to do. Anyway, my Dad runs a big marathon every year (last year he finished the one in Chicago). When he was at College of Charleston he would raise money for his baseball program, but now that he's at Auburn he doesn't have to do that. So, we want to raise money for the renovations at the Hematology/Oncology Clinic. You can read about the renovation plans on MCG's website, and you can read more about my Dad's plan at www.runcoachrun.org.

I really want to raise enough money to get the clinic a blanket warmer-with my name on it!- because patients like me get really cold when we are there for a long time getting treatment. Thanks alot, and thanks for always checking on me.

 

Posted Sept 23, 2008 6:18pm

Well, you know how my last update I said I wasn't feeling well? By Sunday I was running a hugely high fever and my Mom had to take me to the ER at MCG. My doctors admitted me and here I still am. So far all the tests they have done, including a CT (drinking that contrast stuff is disgusting), are negative so they aren't sure what is causing the fever except not having any immune system right now. But, they are giving me every medicine they can think of to help me, and I am starting to feel a little better.
Hey Len, thanks for the awesome pics of all the PURPLE cars that were at the show on Saturday. I wish I could have gone, and now it looks like I might miss the one on the 27th too. Hopefully you'll see that '56 Chevy truck my mom is so crazy about!

Don't know if all of you that read my updates know that MCG is going to be renovating the children's oncology clinic. That is where I go see my doctors in between chemo treatments for them to check my counts, get blood and all that other time consuming check-up stuff I have to do. Anyway, my Dad runs a big marathon every year (last year he finished the one in Chicago). When he was at College of Charleston he would raise money for his baseball program, but now that he's at Auburn he doesn't have to do that. So, we want to raise money for the renovations at the Hematology/Oncology Clinic. You can read about the renovation plans on MCG's website, and you can read more about my Dad's plan at www.runcoachrun.org.

I really want to raise enough money to get the clinic a blanket warmer-with my name on it!- because patients like me get really cold when we are there for a long time getting treatment. Thanks alot, and thanks for always checking on me.

Posted Sept 20, 2008 12:39pm
Well i haven't been feeling too good lately so i didn't go to Auburn. We'll probably go next weekend. my counts are pretty low too. So i get to just chill at home till they come up.

 

Posted Sept 16, 2008  4:48pm
Well I got back Sunday, I feel okay kinda. but my counts are probably going down. I go to the clinic tomorrow so that should be fun, ha just kidding. This weekend we are going to Auburn for the LSU game. I also started home bound today.

 

Posted Sept 9, 2008  9:37am

Well I believe I am going into the hospital today so my next update won't be until well I don't know when. Got to go pack.


Posted Sept 7, 2008 10:01am

I went to the Clemson game yesterday and it was fun. We won 45 to 17. The dermatologist think my rash is psoriasis. So they gave me some more creams to put on it, and I have to lay in a light box for 5 minutes three times a week for two weeks. Hopefully that will help it. My chemo is on hold until the rash goes away on my chest. Because the clinic can't access my port if the rash is still there. Well I'm feeling fine!!!


Posted Sept 4, 2008 2:27pm
I was supposed to go into the hospital yesterday(Wednesday) but they wouldn't admit me because of the rash I have. So tomorrow I am going to meet with the Dermatologist again. I think it will be the fifth time. They still don't know what this thing is. The biopsy results showed either an acute drug reaction or an early on-set of psoriasis. But my oncologist said there was no way that it could be psoriasis. So hopefully tomorrow they will figure it out. This weekend we might go to Clemson for the football game. I don't know yet.

Posted Aug 31, 2008 10:07am

Well hey guys, I'm in Auburn this weekend. We came down for the football game Saturday, and Christine and I are working camp today(31st ) and tomorrow. Then I'm scheduled for chemo on Wednesday for a 5 day in-patient round. So last Friday(29th) I had to go back to the dermatologist because the rash that I told you about came back. But it's worst than before. So they took a biopsy of it, which hurt. They numbed up one of the bumps with some cream, then they gave me a shot in it of lidocane, then they took this hole puncher thing and took off two layers of skin that had the red bump on it. They are expecting the results to be back Tuesday. Hopefully I will be able to go in the hospital on Wednesday. My birthday was good, and everything here is great.

 

August 19, 2008 3:39pm
I haven't been on in a while and that is bad because I just didn't feel like it which is kinda dumb considering I feel fine. That is just laziness on my part. Anyways last Monday(the 11th) I went into the clinic for a cardiogram, that went fine, and chemo. But then they(people in the clinic) sent me to the dermatologist to check out this rash I had on my chest, arms, and legs. It turned out to be nothing, and it's gone now, sorta. So then I didn't have chemo on Monday, I had it on Tuesday and Wednesday. Tuesday was not a good day because I got sick(eww) and Wednesday was ok but not great. Now I feel fine and my counts are in the process of dropping. I don't have any plans for my birthday because my counts will probably be low by thursday.

 

August 10, 2008 6:49pm
Well I just got home and I had sooo much fun. Hard Rock Park was fun but it was shockingly empty. Absolutely no one was there. I asked the lady at the entrance if it was always like that and she said "yep". It was fun not waiting in line. Saturday night we went to the Alabama Theater and saw this show called "one". It was really good. Tomorrow I go get an echocardiogram and have chemo(outpatient round, monday and tuesday).

 

August 7, 2008 4:35pm

Oh my gosh, oh my gosh, oh my gosh!!!!! Well in my last update I mentioned going to the beach. But not only do I get to go to the beach... I'M GOING TO HARD ROCK PARK!!!! I didn't think we were going to be able to go because on monday my platelets were only 53,000 and they have to be 100,000 to ride a roller coaster. So when I went to the clinic today Dr. Ameri said my platelets were 105,000(I nearly SCREAMED) and I asked him if I could ride a roller coaster and after he told us the story of how his cousin gave her third husband(she didn't really like that one) a heart attack on a roller coaster he said yes!!!! SO I'M GOING TO HARD ROCK PARK!!!! yayyyy

 

birthday: 8-21 =)


August 6, 2008 10:51 pm
My platelet count came up but not enough for chemo so my round of chemo is scheduled for monday (the 11th) and tuesday. Well I'm leaving friday(8th) morning for the beach be back sunday!!!

August 3, 2008 8:48pm
Well I was supposed to go in for an out-patient round of chemo tomorrow(monday the 4th) but for some odd reason my platelet count just won't come up. My white blood cell count is fine. So I'm not sure when I'll be able to have that round. And my mom and dad are thinking about taking us to disney world over Christmas break. I think it would be soooo much fun!!! I'm pretty sure I'll be done with chemo by then so I won't have to worry about a hectic schedule. Well my birthday is almost here YAY.

Jul 27, 2008 11:24am
Well I know I haven't been on in a while so I'm going to fill you in. The week of the 14th I had chemo in the hospital and got out the 19th. So now I'm just waiting on my counts to come up. I feel okay but not the best. And I'm so excited for my birthday(aug. 21)!! I can't wait. ** I want to thank Len and The Casual Corvettes for my AWESOME model purple corvette!!! I LOVE IT ** For all the people thinking were moving to AL, I've lived just with my mom for seven years, were not moving away from North Augusta.

July 13, 2008 at 04:01 PM EDT
I'm back. The beach was a blast!!!!! I had a great time. Whenever I get the pictures we took down there I can post them. Sad to be back. I'm going into the hospital tomorrow for a round of chemo. Wish me luck.

July 01, 2008 at 10:56 AM EDT
OH MY GOSH!!!!! I can't wait! Just thinking about the beach makes me want to jump up and run around the house!!! So to prevent myself from doing that, I'm going to go pack. I'll be like my cousin Mabrey who packed last week. Ha, poor Aunt Shay!

June 28, 2008 at 01:52 PM EDT
I haven't been on in a few days so for those of you who don't know I'm back at home. They discharged me thursday(26th) night. I feel a lot better. I can't wait till next sunday!!! I'm going to Edisto(me and Mrs. Frazier's favorite place)! But on July 3rd I think I'm going to AL for their 4th of July picnic thing. So that should be fun if I go.

June 25, 2008 at 08:26 AM EDT
Well guess what.... I'm in the hospital! I was put in yesterday around 6ish. I originally went to the clinic to get blood products because I knew I needed them. So they brought me platelets and I got half the bag and then started to break out in hives. Then Mrs. Pam(one of the nurses at the clinic) was about to de-access(take out the port needle) me, she took my temperture and it was 100.5. I knew it would go down so I demanded her to take it again and it was back to normal. But thanks to the doctors in the clinic I am here.

June 18, 2008 at 05:35 PM EDT
Well i'm done with chemo for this month. Don't feel soo bad, yet. K, well i have to go, my eyes hurt.

June 07, 2008 at 09:13 PM EDT

Well guess what! Chemo starts back on......June 16, but it is an outpatient round so only 2 days. A little bit earlier than I was hoping for but I'm ready to get it over with.

May 27, 2008 at 04:22 PM EDT

Well I start back on chemo in july. They said I have around 8 more cycles to go. So I'm halfway there.

May 21, 2008 at 08:56 PM EDT

OH MY GOSH!!!!! Today Dr. Hatley called!!! He had my pathology results!!!! So we found out that the tumor didn't have any cancer cells left, my ribs and the margins were clear, and NO RADIATION!!!! I AM SOOOOOO HAPPY! Prayers really do work. Thanks!!

May 16, 2008 at 12:51 PM EDT
Well right now i'm pretty sore, but getting ready to go to yearbook signing at my school!!!! YAY. I'm sooo excited. I'm just waiting on my mom to get out of the shower, she's a slow-poke. Remember to go to my foundation page, mlpfoundation.org to look at the clemson pictures!!

May 14, 2008 at 04:16 PM EDT
Clemson was soooo much fun! Coach Jack Leggett started a bank account, and donated all the money to my foundation! So we had $15,000 added to it. Plus $1,600 that people just donated last night!!! It was amazing! Well, I'm still sore, but improving.

May 09, 2008 at 07:55 PM EDT
well i'm home. it feels good to be back, and i'm sooooo sore!!! and tuesday i get to go to clemson!!!!!! but the surgeons got the whole tumor out!!!!!!!!!!!!!!!!!!! and now we are waiting on the patholgy results on the ribs.

May 03, 2008 at 04:53 PM EDT
Ok, I am finally out of ICU. They let me out Friday the 2nd. Also on Fri. Dr. Yu, the plastic surgeon, removed my J.P. Drain out of my side. It kinda stung but it had to be removed. Today hasn't been the best. I'm soooo sore. But hopefully it will get better. Dr. Hatley, my surgeon, said my chest tube will probably come out on Monday the 5th, unless it needs to come out before then. So I'm doing fine, other than the soreness.

April 30, 2008 at 08:58 PM EDT
Just wanted to reach out again and let everyone know that Mary-Louise did very well today (Wed) with her surgery. It was a very long day to say the least as she was in the OR from 11 AM until about 6PM. The Dr's continued to update us every hour and keep us informed during the whole procedure. They were able to remove the tumor and test the area surrounding it and the results were very good. We will just wait and get the results back from the ribs they removed and other common areas. We are currently in ICU until they let her move to another room, which we hope will be in a few days.

April 24, 2008 at 05:45 PM EDT
Well, today I went to the Doctor's office/clinic and we met with Dr. Hatley, the surgen doing my surgery. And also Dr. Yu, the plastic surgen helping with my surgery. So my surgery is taking place on April 30th. Next Wednesday is the BIG day!!!!! I'm sooo excitied. I'm ready to get it over with. It's going to be a pretty big operation. But they only expect me to be in the ICU for 7 to 10 days. Gosh, I can't wait!!!!

** Drive by the Sno Cap on Saturday, April 26th! 4pm-10pm

** www.mrknickerbocker.com BUY SOME SHIRTS(even if you can't stand Clemson)!


April 21, 2008 at 05:56 PM EDT
Ok, so this past weekend I went to Tennessee. It was sooo much fun. I loved seeing everybody. But we are deffinitely having my surgery here. It is probably going to be the week of the 28th. We don't have a date yet.

www.mrknickerbocker.com

April 10, 2008 at 03:05 PM EDT
Well, we are just waiting on second opinions for surgery. So everything is on hold. And the tumor has shrunk. I can't remember what the new measurements were, so my bad.

BUY A SHIRT AND SUPPORT ME!!!!!!!!!!!!!!! go to www.mrknickerbocker.com and click on FEATURED ITEMS

March 25, 2008 at 08:59 PM EDT
Ok, well it took forever to get those scans done, but I have no idea when we will get these results, but as soon as I know something I will post the info. I was supposed to check in to the hospital for my 5 day stay on Mon. but my scans took to long. Then I was supposed to go in today(Tues) but my counts weren't high enough. Then I was supposed to go in Wed. but my mom called and asked if it would be okay to wait till next Monday,and if that wasn't okay I would just go in tomorrow, but the doctors said that was a good idea b/c they are more worried about my well-being then the cancer. They are really concerned about my weight. So... it's time to get fat!!! :]

March 17, 2008 at 06:56 PM EDT
Ok, this past weekend we went to Charleston. It was good to get away. But my counts are extremely low. And I know everybody is wondering how my tumor is reacting to the chemo so I have news. I have the first body scan since my diagnosis on MONDAY at 8 am. That part I am not so happy about, it's a bit early. But other than that, I'm good.

March 11, 2008 at 05:10 PM EDT
Well today I feel better than I did. Still not the best. There's not much more to say so I'm going to watch Gilmore Girls.

March 09, 2008 at 06:40 PM EDT
Well I just had a 2 day round of out patient chemo. I feel soooo sick. I don't really feel like talking so I'm gonna go.

March 02, 2008 at 10:17 PM EST
hey guys. I am feeling great!!!!!! and the game was sooo much fun! But I would like to congratulate Keith Claussen for winning most vists to my carepage!!! an AMAZING 106 vists. unfortunately there is no prize for this award. just a job well done. and thank you to all the others who vist.

February 28, 2008 at 01:14 PM EST
I tried to update this thing, but it didn't really work so I'm sorry for not posting. But I was in the Star(newspaper). I don't know if I'm happy or what. Now I'm sure Mr. Brown is going to make all his classes read that thing. But I don't care, I guess it's a good article. It's just weird being on the front page of the paper with something so personal like that. But anyways I'm feeling fine. Not much to say except that I am going to the College of Charleston vs. Clemson baseball game on Friday the 29th! It's going to be fun. I can't wait for my next round of chemo! =]

February 13, 2008 at 09:00 PM EST
Well, I am back in this dreadful place I like to call the hospital. I am in for my 5 day stay. I checked in earlier today(2/13/08),and plan on leaving Sunday. So I will be here checking this everyday!

February 04, 2008 at 09:11 PM EST
OH MY GOSH!!!! I absolutely love everybody that goes on this website. Espically my favorite uncle, Uncle Mike :]. Every time I read a message I smile. It just makes my day. But anyways I am doing good. I get to go back to the lovely place I call the hospital on Monday! So much fun. A five day stay YAY!

Check out my foundation page:

www.mlpfoundation.org

January 28, 2008 at 03:08 PM EST
Well I am in the clinic getting some chemo. And I have the worst headache, my mouth taste like metal, and I have to go to the bathroom. Just great. I love this place I think I might move in. Ahhhh no this place is aweful!!!!!!! But I come back tomorrow. I'm kinda tired so I think I am going to take a nap.

January 18, 2008 at 06:34 PM EST
Hey everyone. I went back to the clinic today. My counts are still low but they should come up soon. My echo went good but I really don't like that jelly! I am supposed to go back to the clinic Tues. and Wed. for out patient Chemo, but it might be delayed if my counts aren't back up. But if it is I will be having it Thurs. and Fri.

January 17, 2008 at 08:37 PM EST
Hey everyone. My counts are in the process of being low. But they will come up eventually. So I go back to the clinic tomorrow and I have to get an echo done. But thats about it.

January 13, 2008 at 11:10 PM EST
Hey guys. Okay, here's the deal I am at home now but on Wednesday I start going to the clinic every other day so they can check my blood counts. But I am not sure when my next stay in the hospital will be my parents haven't told me. But I will keep everyone updated.

January 08, 2008 at 04:57 PM EST
Okay! I am back in the hospital for a round of medicine. But I get to go home on Friday if everything goes well! So lets hope so! I have nothing more to say but if anything happens I will post an update.

December 31, 2007 at 05:38 PM EST
Hey everybody its Mary-Louise. Well I have some bad news and some GOOD news. The bad news is that on Saturday the 29 I was taken to the hospital at 6:30 in the morning. So yes it is true I am back. :[ I am doing fine though! Now time for the good news. MY COUNTS ARE STARTING TO COME BACK UP!!!!!! I was so happy when they told me this morning. But I am not sure how long I will be staying here but hopefully not to long. Keep sending messages. I love reading them.
-Mary Louise

December 26, 2007 at 02:48 PM EST
HEY! this is Christine. MLP has some GREATTTTTT news! SHE GETS TO GO HOME TODAY!!! YAY! The Doctor's came into the room this morning and were like "you are being discharged." she is mega excited! she will have to come abck Jan 7 for about five days. but until then she is gonna be home! so guess what that means?! she has to go to school when we start back but only for what like 2 days. haha. jk! so not fair. but anyways she will update it later. tah tah for now!
*Christine*

December 25, 2007 at 03:25 PM EST
Hey fellow viewers! Its Mary-Louise. I have been so sick the past few days but I am feeling soooo much better! I had a wonderful Christmas. What about you? I can't wait to go home. This place is getting pretty old. But anyways thanks for all the gifts and bears and love everyone has sent me!

December 23, 2007 at 06:52 PM EST
hi there.
yesterday was pretty crazy so i didnt get a chance to get on here. MLP got her chest tube taken out yesterday morning! she was screaming so bad. you probably could hear it all down the hall. lol. It hurt pretty bad she said. also yesterday, mlp felt pretty bad. so it was a day-in-bed kinda day. today she felt even worse. but now she is feeling a little bit better. so hopefully by tomorrow she will be good again. i dont really know what else to add. but thanks to everyone who have been leaving messages and thanks to everyone who has brought mlp balloons and bears and foods and many of the various other things people have brought. seriously this room is getting a little cramped. there is tons of stuff in here. well thats all for now. adios!

December 21, 2007 at 08:50 PM EST
hey guys!
its Christine, back reporting on mlp's day!
today mlp got her braces taken off!!! she's wasn't too excited though. She thinks that they are gonna mess up cause they were taken off a month early. I told they are gonna be fine! She is getting 2 retainers pretty soon, so they will be okay! They look gorgeous! They look pretty much just like mine! haha. Also today our grandparents from NY came down, along with our Uncle Mike (he thinks he is mlp's best friend. yeahhhh.)***oh, if you havent figured out already mlp stands from Mary-Louise. We all just call her mlp when typing. its easier.*** okay, back to mlp's day. Since I've gotten here its been pretty crazy. A couple of her friends came down for a little while to visit. GUESS WHAT?! Mary-Louise walked for the first time today! She went for a stroll around the hospital today! YAY MARY-LOUISE! she was quite excited! instead of using a walker to support her she pushes around a wheel chair! lol. mlp is staying positive through all of this. and whenever im around she just can't stop laughing! :) haha, well her friends being around probably is part of it too! well that's all for right now, that i can remember. Ill be back later! Until then keep sending messages! Mary-Louise loves them! Hey Mrs. Frazier! Thanks to everyone for all the support we really appreciate it!
love to all, Christine and MLP

December 19, 2007 at 09:49 PM EST
GUESS WHOSE BACKKKKKKKKKKKKKKKKKKKKKKK?
that's right! CHRISTINE! :)
im back typing for ml louweezy. she didn't feel like doing this tonight and my dad is insisting on us updating this thing. here you go dad! here is what mlp is telling me to write: tonight im having a sleepover with Abby and Rachel. Brock is also over here just chilling for a little while. nothing else is going on right now. well my dinner is here. ill be back later. send me some love -MLP.

December 18, 2007 at 10:45 PM EST
Just wanted to let everyone know how things went today. My surgery took a long time and I am pretty sore. Cant wait to eat some food. I already had a popsicle n a cup of ice(wow great meal). I got a few things today from my family n friends, lots of cards for my wall, Guitar Hero III, n I fogot that yesterday we put up a Christmas Tree n the room. Well, I am really tired n want to sleep. Will try to post some new pictures tomorrow. Luv ML

December 16, 2007 at 12:50 PM EST
Hey Guys! Its actually me, Mary-Louise, typing! Ive been getting up and moving around in my room today! But tomorrow I am going back to the OR and getting a byopsie. I dont think I spelled that right. But I have had so many visitors! Everytime some of my friends walk in it brings tears to my eyes. But I have some GREAT news! My results from my bone marrow test are back, and whatever is in the mass of stuff in my lungs is not in my bone marrow!!!!!!! That is really good! Thanks for coming to my page and I will update after my surgery tomorrow!

I LOVE YOU

December 15, 2007 at 07:25 PM EST
Thanks to the following:
*Autumn and Ryan--the lovely, colorful balloons
*College of Charleston--The beautiful flowers
*Mamaw--the adorable build a bear
*Rachel--the delicious rice krispy treats
*Mimi and Pop-Pop--the balloons!
*Uncle Mike & Aunt Lisa--Angel Bear & Flower arrangement
*The Weigles--the snowy/Brock bear!
*NA Middle School--the flowers

It was so thoughtful of all of you! They have made me feel so loved. I really appreciate it!
Mary-Louise

December 14, 2007 at 11:19 AM EST
Owwwwwwwwwwwwwwwwwwwwwwwwwwwww.
my bone marrow test in the OR was successful, but we don't know the results. and i have this stupid test tube inside of my body and it hurts like crazy! I can't wait to get this out of me. I'm not sure if i'm going to be able to go to new york in time but i sure hope we do. Leave me some LOVE!
Mary-Louise